Monday, 27 June 2011

The unlucky ones

When the phone goes off early in the morning at weekends I always know it’s my mother-in-law. Nobody else rings us on the landline, or not much anyway. More to the point, anybody else would realise that nine a.m. is an unacceptable time to receive telephone calls. The first time it happened I was convinced that there must have been an emergency, that we would be throwing on our clothes and rushing to an Oxfordshire hospital, but I soon realised that we just had different ideas about these things. Similarly, if you know what’s good for you, you don’t ring her when Coronation Street is on. Those have been the rules for far, far longer than I have been on the scene: it’s the only bit of the television schedules I know with any degree of certainty.

They talk on the phone a lot, more and more these days, and it’s always a cheerful chatter, often about nothing much. Sometimes Rose rings to get things off her chest, and I see Kelly curled up on the sofa moving the conversation along with a volley of quick, gentle syllables, a “right” here or an “uh huh” there. On the very rare occasion she’ll say “mum, you’ve told me that before”, but never with any frustration. It’s just nice to hear the voice of someone you care about, even if they say what you know they’re going to say. Sometimes knowing what they’re going to say is part of the comfort.

The phone calls can be for the strangest reasons – to ask Kelly whether she can pick something up from the shops, for consumer advice, for tips about the computer Rose now almost knows how to use, or just to say tell her to change the channel because there’s something on television Rose wants Kelly to see. The curious network that holds my in-laws together seems to work like that; many’s the time that Kelly’s phone has pinged with a text from her sister Heidi. “Put Radio 2 on! Put Radio 2 on now!” it will say, and Kelly will, and the soundtrack of their past will seep from the speakers into the kitchen like the incense of nostalgia.

My mother in law rings on Saturday morning and when I pick up the phone the first thing she says, apart from “It’s only me” (she always says “it’s only me”, even though it’s a special occasion for Kelly every time she calls) is “I didn’t wake you up, did I?” That counts as progress, I suppose. This call is to finalise Kelly’s visit – she is staying overnight and taking her to hospital the next morning for an MRI scan. I sit up in bed tapping on my phone and waiting for my tea to cool down, half listening to the back and forward of the two most organised members of a family which is not good at making plans, trying to do exactly that. It happens every time but that’s part of the comfort for me, too.

At the end, Kelly passes the phone back to me. “She wants to talk to you” she says. So we chatter away about my recent visit to the specialist, the latest in a long line of doctors to declare me beyond the help of conventional medicine. This one was private, which only really seemed to mean that the diagnosis was preceded by a wait in a nicer room and delivered across a more attractive desk. As so often, I found myself considered well enough not to require treatment, even if I was not well enough to find that helpful. “There are some experimental methods used in other parts of the country.” he’d said cheerfully. “But there’s no evidence that they work.” I hadn’t minded that so much; experimental and medicine, in my book at least, are not words that belong in the same sentence. At the end there was an embarrassing moment of expectant silence. I was waiting for him to come up with something else, he was waiting for me to thank him and tell him that I felt reassured. I can’t imagine he would have been anywhere near as disappointed as me.

I don’t tell Rose all of that, I don’t want to burden her with her MRI on the horizon, so instead I say “They don’t really know what to do. I could have the tests again and see if they’re different this time.”

“At least it’s nothing serious.”

“Well, I suppose so. Don’t worry about the MRI by the way, I had one last year and they’re nothing to be scared of. You just have to lie still and try and forget about the noise.”

“I don’t understand it. I was never ill, not for the last thirteen years, and now it’s all come along at once.”

I smile, because she’s not alone; I have exactly the same problem. We’re the unlucky ones where it’s one thing after another, and they’re always things – my RSI for example, or her tinnitus – that are the very edge of medical science, things nobody understands, things that just “go away” or that you’re supposed to learn to ignore. (“You’re a special case, aren’t you?” Kelly had said as we drove away from the hospital. If only it was the right kind of special). If you go to a doctor with a tangible problem with an obvious cause that they know how to fix, they’ll fix it. They may tell you off about your lifestyle first, but then they’ll fix it. But for the people like Rose and me, at the fuzzy edge of the graph where there are no straight lines and nothing makes sense, they don’t want to know. They don’t even consider us a challenge. Medicine is so clearly the creation of men.

”I know exactly what you mean, Rose.”

“I take so many pills now it’s a wonder I don’t rattle. There’s the ones for my dizziness.”

That’s another problem Rose has that they didn’t know how to fix. It’s a problem I used to have that they didn’t know how to fix either. I briefly remember the awful sensation of being at the middle of a giant turntable, looking at the computer screen and being unable to work out why it wasn’t moving the way it felt like it was. Perhaps I should offer her the rest of the tablets in the cupboard in the bathroom.

“I used to take those too.”

“And then there’s the ones for my cholesterol.”

“Yes, I’m on those as well, every night.”

We race through the contents of our medicine cabinets playing snap, me saying a mixture of “Yes, I take those”, “I tried them, they didn’t work” and “You should stay on those as long as you want”. Kelly looks on and smiles because bonding is bonding, even if you’re bonding through adversity. When we have finished comparing repeat prescriptions, I hand the phone back so that Kelly can administer the Love you, bye! that always marks the end of a phone call from Rose.

”What are you smiling at?” I ask her.

“You two. You’re sweet when you talk about your ailments.”

Later that morning, I throw my clothes on head out for my acupuncture appointment, another experimental treatment a specialist suggested to me when he ran out of ideas. Rushing through the leafy streets I pass the Polish church looking splendid in what little sunlight has forced its way through the clouds, if maybe a little too clean and new. The weather is confused; hot and muggy yet not at all bright, as if it hasn’t decided what it wants to be. I can identify with that.

I reach the main road, lined with grand houses. At the top of it, the church and the funeral director sit on opposite sides of the junction, seemingly in cahoots. The sun chooses to come out at this point and ribbons of floaters dance in front of my eyes; they are always there, unless I am looking at something important. Apparently they will eventually go away or I will stop noticing them - failing that I am told there are some experimental methods I might want to consider. I am just about to cross when I am brought to a sudden stop. In front of me an ambulance hurtles past, a dayglo streak, wailing sirens cutting through the thickness in the air. I watch it for a second, on its way to somebody with real problems.

20 comments:

Danger Boy said...

"Sometimes knowing what they’re going to say is part of the comfort."

A very true sentence indeed. Mom and I have traditional statements we use as punctuation...they're habitual, like the way I kiss her forehead, and a way to say "I love you" in a completely different way from 400 miles distant.

jan.carr said...

I loved that.
It felt like I was in your house, so much I could practically hear the radio and teaspoons chinking in a nice hot cup of tea.
Last para is great
All of it heartening, warm and real
Luvverly

Sharon Longworth said...

In our house, it's always 10.00 on a Sunday morning. It's always my mum, and we know it's her because she is also the only one who ever uses our landline.

We go through a familiar routine of recounting her medical appointments for the week, followed by her round-up of the calls she's already made to my sisters. In return I assure her that everything is great at my end, we're all grand and the only blot on the landscape is work. The conversation rarely changes; I hope it brings her comfort. I'm always left with the certain knowledge that I should be a better daughter.

A lovely post, one I could relate to entirely and a proper demonstration of how well you write about what's important.

The Jules said...

Like. The post that is, not your ailments. I'm indifferent about those.

Medicine really is the art of diverting the patient until nature effects a cure.

One Woman's Thoughts said...

My mother used to call often but for sure every Saturday morning between 8:30 and 8:35. A conversation only minutes at most. She's long gone now and I now talk to my elderly Auntie Rose in Canada every few days, usally always in the mornings. We have almost the same conversation each time and I always try to bring a bit of humor in before we hang up. She called last week in the evening while I was in the midst of entertaining with a party. I stopped everything and took her call. Smiles.
Even in the light of feeling that the medical miracle world doesn't have anything in the bag with your name on it, it is reasurring to not feel alone. When all is said and done a little love goes a long way. Non the less I am sending you positive energy and wishes to make your world better somehow.
You wrote a lovely and touching post today. It certainly hit home to me.

Blissed-Out Grandma said...

You have really captured several of the truths about medicine. The things on the edges can be just as painful or disrupting to one's life as the mainstream illnesses, but they simply aren't understood well enough. These days, I hope every ache and dizzy spell doesn't portend something ominous.

Mimi said...

I too felt as though I was in your house, listening to yoru conversation with your MIL.
Bonding IS bonding, and it's great to find someone in the same predicament as yourself, especially as man-made medicine can't help you.
Do hope the acupuncture will though..

tennysoneehemingway said...

I always know when my Mother in Law calls. She's taken to calling me at work now and I pretty much know it's her every time. She also starts the convo with 'it's only me.' I love her to bits but sometimes....

Mustang Sally said...

I don't go to the doctors anymore except in emergency situation ... or unless it's something I know I need antibiotics for. For one thing I don't have insurance, but even when I did it was the same.

It seems that if I can't tell them what is the matter with me ... well then, they can't tell me. And they're just way to expensive to get no results.

I hope the acupuncture works out for you. You have a lovely blog, very well written.

Julie Cohen said...

This is wonderful and warm. I really enjoyed it. Thanks.

debbie in toronto said...

"Medicine is so clearly the creation of men."


so true...you get the impression sometimes with Doctors that they are just giving it their best guess.

however surgeons and heart specialists and those kinds of doctors do have to have real talent....

anyway lovely post...can so relate to note calling when Corrie is on...it's THE LAW.

Lady Jennie said...

I feel like that a lot of the time - my blood tests just wrong enough that it's not normal, but not shocking enough to point to something. I hope you feel better.

I always fall into thinking that if I just changed my diet and ate macrobiotic or something everything would miraculously get better. The problem is that it's so hard to do with no assurance of success.

Philip said...

I liked that I could imagine your pathway at the end bit. I liked that you've talked about these conversations before, or Kelly has. That it doesn't matter who it was really cos you've just done real life justice, and that's always something you do well.

mrtsblog said...

Great writing. I have Crohns disease, which is a chronic digestive condition with no cure. I also have eczema and asthma, again no cure, just treatment. I've had countless other niggly little things. Love the description at the end too, but mostly just some brilliantly recounted and real dialogue

Jennifer said...

My favorite line was probably: "At the top of it, the church and the funeral director sit on opposite sides of the junction, seemingly in cahoots."

I really hope you do start to feel better, or it does just "go away," whichever comes first, I suppose.

At least you have someone there to help you through it, which I'm you don't need anyone to remind you of...

Sarah Mac said...

Sometimes we just want to know don't we, the not knowing becomes so boring after a while.

The last time I saw my doctor he told me 'I'm going to send you to see someone'. When I asked him who he replied 'I don't know, lets do some more blood tests first' ..........

Mr London Street said...

Thanks everyone who commented on this one.

Danger Boy - I think the language we develop with the people we love is a beautiful thing.

Jan - Really nice to see you stopping by and commenting. I’m so glad you liked this one, it’s lovely that you felt like you were there.

Sharon - Sad that your similar conversation doesn’t seem to give you any comfort. But then I’m not a good son, it’s just that I have silence rather than conversations to remind me of that.

The Jules - Indifferent? I would sooner you were very much anti- my ailments.

One Woman’s Thoughts - Thank you - your comment too is lovely and touching. You are right that love makes a difference, and the image of your conversation with Auntie Rose made me smile.

BlOG - Me too, I always worry that everything won’t get better and think about how it could get worse.

Mimi - The acupuncture is for the RSI actually, and tends to be reasonably helpful.

tennyson - That’s lovely but I wouldn’t want to take calls from Rose at work! I’d never get anything done.

Mr London Street said...

Mustang Sally - Thank you for saying such kind things about my blog, and welcome to it. We’re lucky here in the UK that insurance isn’t an issue.

Julie - I don’t think you’ve ever commented on my blog before, I’m really chuffed that you did. Thank you.

Debbie - Knowing what medical students were like at university certainly doesn’t help either.

Lady Jennie - I’m really not buying the macrobiotic diet thing. That’s very much a last, last resort.

Philip - I think it must have been Kelly, I try not to repeat myself. But it’s inevitable there will be some overlap at some point.

mrtsblog - Welcome to the blog and thanks so much for commenting. I know a few people with Crohn’s and it does sound awful so you have my sympathy. I hate all these niggly things, they are so often put down to stress, but of course having them is stressful so it’s a bit of a vicious cycle isn’t it.

Jennifer - I have been waiting for it to go away for ages, but I suppose it’s still possible. Yes, I am lucky to have someone if nothing else. I wonder if she feels quite so fortunate.

Sarah Mac - Blood tests do sometimes seem to be all they’re good at don’t they.

Harmony said...

I think it's the waiting that gets to us. Whether it's the wait on new test results or a new breakthrough in medicine, it's the waiting that allows our minds to creep to the darker regions for outlandish reasoning.

My son, within the last year, has been diagnosed with a heart condition that will ultimately lead to surgery and with no medication available to deter the deterioration or treat it in any way we are left with hope and waiting. Hope, that it will not progress at an accelerated rate and the waiting every 6 months for more testing. In the meantime, he is very strictly not allowed any caffeine in any form and restricted from contact sports.

He is an 11 y/o boy, life IS a contact sport. I can't help but chuckle that no matter the efforts we put forth, he will always be a boy. A lively one at that, thank God for that.

Reading your post, I wonder if these thoughts will one day be his. As the present day is spent with very little focus on his condition (I could never take away his innocence with the burden of his full medical knowledge). Or, if by that age this condition will have been treated and long forgotten. Either way, I take comfort in knowing, that he will always have his family there to support him.

Lovely post, MLS. You always have a way of churning out emotions that simply apply to everyone. Thanks for sharing.

Mr London Street said...

Harmony - you are welcome. It's lovely to know that you still come by, and read, and comment. I'm so sorry to hear that news about your little boy, and I hope the time passes quickly and safely and that things can be fixed soon. I can begin to imagine what a difficult time it must be.