Wednesday, 17 November 2010

Dignity

It has been a testing year in the most literal sense, in that there have been plenty of tests, and she has been there for all of them. She was there the time they packed me off, childlike in pyjamas, into the rattling white tube. She was there the time they attached the electrodes to my hand and elbow and turned the dial. She watched as my arm twitched into the air, a levitation, a magic trick. “It was like a Hitler salute.” she told me later on, smiling despite herself, and so, to my surprise, did I.

She was there when they put the drops in my eyes, when I sat in the café, pupils the size of dinner plates, unable to see things properly, the world all bright blurry edges and swimming shapes, like photos from a camera where the light seals have started to perish. She made me put on her ridiculous outsized sunglasses and took pictures. “Look, you’re cute!” she said. Looking at them afterwards the silliness appealed to me. The holes in my eyes and the shape of the world had returned to something like normal, and only the good things were still extraordinary. They didn’t learn a lot about me in all those tests, but I learned a lot about her.

So naturally, she is also there when they put the camera down my throat.

We go into the room together and she sits in the corner. There is always a chair in the corner, in these rooms, and it’s always where she sits. They get me to lie on the coach on my side and then they ask me some questions. They ask if it’s okay to use my first name, and without thinking, I say yes. It’s a low and dirty trick, asking that. They don’t tell you just how many times you’re going to hear your name spoken in the next twenty minutes, like a mantra, like an incantation. If I’d known I would have bloody-mindedly said no, got them to call me Sir instead. Let’s see how they build trust and rapport now, I’d have thought to myself.

The ineffective, inadequate anaesthetic spray in my throat is next. It is given the bare minimum of time to work, only just long enough for me to register how vile it tastes. Then the guard goes in my mouth, like being at the dentist. I’m not scared of the dentist. You could almost think it’s innocent then, right until the point where they get me to swallow the tube. “One big gulp” says the nurse, jovially belittling what I’m about to do. It’s not a sensation I can properly describe; imagine swallowing something that never ends, for what feels like forever, and you might get close enough. I hope you cannot really imagine it, I wouldn't want you to be able to.

All I can hear is the rushing sound of the fluid in my mouth, my breathing, harsh and jagged, the nurses repeatedly saying my name, cajoling me, telling me to breathe. I am facing away from her, away from the screen. Even if I wasn’t I would still have my eyes shut. I’ve always been frightened of what I look like on the inside. I try to pick out, in the smallest of gaps between all those noises, a supportive silence from the corner. It’s one of the only things that helps.

I’m not one of life’s stoics, so I’m no reliable judge of whether this is anywhere near as awful to watch as it is to experience. I sort of hope it is. But how would anybody know? I can’t move or make any noise at all. I wish they’d stop saying my bloody name. I wish I could tell them that. But I can’t say anything, I can only lie mute, a jangling bundle of sensations I can’t ignore. If time flies when you’re having fun, it shuffles on its knees across broken glass at times like this. Everything is in the worst kind of slow motion, the slow motion in which accidents, disasters and sporting injuries always seem to happen. I could have been there for hours or seconds and I just wouldn’t have a clue.

The consent form I signed and gave to the nurse when I first arrived uses the word “invasive”. I can think of dozens of better, more accurate adjectives but if they were on the form instead nobody would ever sign it. The information sheet I was supposed to look at beforehand is folded up in her bag. I never did; I asked her to read it for me and tell me whether I had anything to worry about. I can’t be trusted to decide what to worry about, another test, a test I always fail.

An eternity later, they tell me they have got to the end of the procedure and that the camera is coming back up. Another lie; what they mean is that we’re at the halfway mark. This is when the retching begins in earnest, awful heaving with every tortuous millimetre. That noise sounds like it’s coming from somebody other than me, would that it felt like it did. I wonder if I could get the tube out quicker this way, but it seems not; the nurses sound worried. There is an urgent, hectoring tone to their voices as they keep telling me how brilliantly I am doing. I bet they say that to everybody. I bet they lie through their teeth to everybody.

I am lying in the foetal position as they draw this thing out of me, the hugest of rabbits from the tiniest of hats, rising up like a clichéd snake from a charmer’s basket. And they keep saying my name, again and again, so much that they’ve put me off it, telling me to concentrate on my breathing. It’s a grotesque parody of childbirth. Finally it is done and I am sitting up, no euphoric glow, nothing to cradle in my arms, no photographs of the beautiful moment, just a feeling of shame and confusion. Then I see all the blood on the pillow.

“What’s that?”

My throat still works. I wasn’t sure until that exact moment that it would.

“It’s nothing to worry about. It’s standard when we take a biopsy.”

The specialist sits me down and gives me the diagnosis. Still traumatised, I’m not in a fit state to take any of it in. It’s as if my brain is speed reading everything he says, condensing it down to one word, hernia, and when I realise that I feel old. Hernias strike me as something that old people have. They probably are, I probably am. I am handed more fact sheets, I in turn hand them to her. She can read them later for me, tell me how worried to be. I feel weak and bewildered as we leave the hospital and walk to the car. Cold, too: the air is biting and I can’t put my jacket on because the shoulder of my t-shirt is soaked with liquid. I don’t know what it is and would rather not be told, which is my attitude to a lot of things.

We drive home in silence. I can still feel the tube down my throat, a phantom presence I’ll subsequently discover lasts for days. Back at the flat, in a new t-shirt, I shiver uselessly on the sofa.

"You’ll be all right." she says.

"Will I?"

I always say that; she outranks any doctor. If she says I’ll be okay I nearly believe it, even though she gets bored of me asking. I worry that eventually she’ll stop answering me, and, always superstitious, I think that will be the day things start to go badly wrong, on more levels than one.

“Of course you will. Don’t be silly. Do you want me to do your verrucas?”

“Okay.”

I remove my socks, wriggle round and position myself so the pads of my feet are poking in the air. The treatment we’ve bought is like a suction cup, firing a freezing liquid into a confined space between the tube and my feet. It’s incredibly cold for a moment, and then it’s over. I am lying on my front, size twelve feet in the air while she performs molecular gastronomy on them with something a little like liquid nitrogen. It’s not a scene I remember seeing in any romantic comedy.

“There you are, all finished.”

“Is it like having a pet sometimes?”

There’s a terrible pause and I think she’s going to say Yes. She momentarily frowns in concentration, then she smiles, then she comes out with something even worse.

“No. It’s like having a child.”

Afterwards she goes into town to shop and lunch. I would usually go with her but instead I lie alone in the bedroom, dim daylight creeping under the blind, feeling ancient, feeling sorry for myself, feeling that tube that’s no longer there. I try to drift off to sleep so I can forget. And I hope there’s still something she loves about me, because it feels like I don’t have any dignity left.

39 comments:

Sharon Longworth said...

Well. That left me feeling horribly uncomfortable. I was swallowing and retching with you, and feeling that sense of violation. So, if I'm honest, I didn't find this the easiest or most enjoyable of your posts, but it was certainly one of your most affecting. Well written Sir.

Rusty Hoe said...

Timely post as I just had my angioplasty on Friday. I don't know what I'd do without David to make me laugh and hold my hand through this whole process. Even having worked in a hospital and knowing the drill, having a procedure is confronting and disempowering. Dignity is long gone, but acting like 12 year olds playing with the movable bed and piddling ourselves laughing in our little curtained off world, made what was a serious situation much more bearable. I often wonder why he sticks around with such a reject.

Mr London Street said...

Sharon - Thank you. I guess that means I managed to convey it. And yes, "enjoyable" is never going to be the right adjective for a piece like this but I'm glad you thought it was worth reading.

Rusty Hoe - Don't be silly. You are far from a reject. My bloody iPhone has rejected about three comments on your husband's post about your angioplasty - so so glad you are okay and on the mend. I always get a bit emotional thinking about some of your hospital posts because I know I couldn't be as brave as you are.

Penny Dreadful said...

Sounds completely and utterly wretched. My favourite posts are always the ones about Kelly. You manage to write about the reality of romance in a way that contains all the bleak bits and the everyday bits and the transcendent bits and it shouldn't work but it does.

I think your book should be about your relationship. It doesn't even have to be connected, you can just do a book of Kelly essays. You already have all the material.

Miss OverThinker said...

I know this isn't the point of the post but I love love love any post you write about you and Kelly.. I agree with Penny, that you could publish a book of such essays!

Starlight said...

I understand how awful this was for you, I've had gastroscopy done 5 years ago and I was crying like a baby. I'll have to go have it done again soon. It's horrible experience and you've described it very well.

Heather said...

I don't know how it is for most women, but as for me, I think I love him most when he is at his weakest. It makes him human to me--the strong facade is put aside, and he gives me his most basic state. It makes me feel useful and it gives me the opportunity to return the strength and support that he gives me. And it is reassuring to know that I love him even when he is miserable, pathetic and broken.

#1Nana said...

Before I read this post I would have thought this to be an easy procedure. No so now. It's one more thing for me to be frightened of...ugh, thanks?

Mr London Street said...

Penny - Thank you. Some people really like the posts where Kelly features, some people have told me there have been a few too many of them recently. I don't know, there's no plan, I just write about what comes up. Thanks so much for the feedback, I do hope it's not schmaltzy or too much. I am getting to the stage now where I feel like I don't have a book in me, or at least not one anybody would want to publish, and that my publication this year was a piece of not-to-be-repeated luck. Next year I'll try coming to terms with that.

MissOverThinker - Thank you. It's always lovely when you come back, pop in and comment. And don't worry too much about the point of the post - I'm just happy that you liked it and said so.

Starlight - I've subsequently discovered that I will probably have to have one every year.

Heather - I sort of understand that. There's something very powerful and primal about protecting a mate, whether you're a man or a woman. Where I fall down, I think, is that I don't have a strong facade or indeed a strong anything.

#1Nana - Oh dear. Do you have one on the horizon? If so, take comfort in the fact that I'm a complete wimp and you've had kids.

Sorry to dip in and respond to comments so early - please don't let it stop you if you want to comment and haven't yet.

Starlight said...

That's bad to hear. I also have to have one every year.
We could go there to suffer together :)

Mrs Jones said...

I've had a couple of these and both times had something put into the back of my hand. Dunno what it was, possibly valium. Whatever, it was a twilight sedative which meant that you didn't fall asleep completely (so you could still respond to instructions) but in the recovery room afterward it made you soporific enough to fall asleep and when you woke you don't remember anything about it. Insist on this next time.

Leisa said...

I'm with Mrs Jones. I've had a gastroscopy or 2 done and they were always done under a twilight sedation. I have vague memories of them telling me to "put this between your teeth" and a little retching but nothing more. I can't begin to imagine having it done wide awake.

You are a million times more brave than me.

TalesNTypos said...

It's real at least.

Robbie Grey said...

Having seen relatives with tubes down their throats, you're right, it's not something I've really wanted to imagine. Your story got me close enough, though, being that graphic. My throat was sore about halfway through the piece.

Saz said...

Dignity...we think we lose it when we give birth, but its not dignity we lose, if there is a word for l cannot think, it the loss of the mystery element, after such an event, with the unspoken and unmentionables, still unspoken and unmentionable...just out there for all to see, hear and smell....unforgettable and instantly forgotten as we greet a bundle of joy, be it baby or husband, loved one safe back in our arms

an experience alright, but she loves you and to be loved is wonderful...

deililly said...

There is nothing like a hospital procedure for making you feel terrified/five/like your body is off the map and you are just clinging on unable to steer.

I did 6 months going 3 times a week to hospital for treatment once. It gave me a fear of buses and tanned people. Am tearful just thinking about it!

Does love really have anything to do with dignity? :)

Ms. Pearl said...

How awful for you. They couldn't diagnose that with an x-ray?

No, you're not old. Even toddlers get hernias.

Glad Kelly was there with you.

Fi from Four Paws and Whiskers said...

Dear god I am going to insist on the twilight stuff if I need that! Horrible experience.. And just hope they can help you now?

Shruthi said...

God, the hospital part sounds horrible. I hate how five minutes feel like 500 when you're in a hospital.

It's uncomfortable reading, but engaging nonetheless.

Lady Jennie said...

I wish there could be awareness that you should be under general anaesthesia for those biopsies. My father in law warned me. They asked him if he was a wimp; so of course he said no. Such cheats!

So when I had mine for the coeliac disease, I told them I was a wimp and insisted on general. It was a breeze. Sorry about your experience - that really sucks.

Helen said...

Having had a gastroscopy, I can confirm the sheer horror of the procedure. It simultaneously feels like drowning and strangulation and attack. Oh - and for dark comic effect the whole waking nightmare is punctuated by loud, involuntary burps. Lovely.

Sedation is the way to go.

This condition does make you feel old. Not least because gone are the carefree days of red wine on an empty stomach. Before being given my medication I thought I was destined to eat only bland, beige food - it was incredibly depressing for a while. I hope you're feeling better now.

Helen x

Moannie said...

As an ex-nurse who never looks away when nasty things are happening in 'Emergency Live and Bloody complete with Vom and Sh.' programs on TV, I have to say that your vivid descriptions made me feel guilty for the times I've said 'Breathe dear, and swallow'

So sorry you are not ok, but really, if you want to keep love alive, get your verrucas treated by someone else, than the beautiful Kelly.

Did I tell you I have my 'View from this end' post and title back up and running?

William said...

Reading this, I thought of how lucky your are to have someone there with you as you go through this ordeal.

debbie in toronto said...

now I've had to go google gastroscopy, sounds awful...

but then when was the last time you had to put your feet in a pair of stirrups?

take Mr. London Street

debbie in toronto said...

oops..take CARE Mr. London Street...

otherworldlyone said...

I too love the posts that Kelly appears in and this was no exception. While I had to take a brief break from your description of the procedure (I'm horribly squeamish), I could picture the scene - with her sitting behind you radiating support. Very touching.

I'm sure you take care of her as much as she takes care of you - just in different ways. That's what it's all about isn't it?

Now, on a different note and responding to some of the dialog in your comments - I hope that, since you seemed to like Kid's post so much, you stop saying that you don't think you have a novel in you and that no one would be interested in your brand of writing. It's bullshit.

You write stories that stand alone and your range is incredible. In six years of blog reading I haven't come across anyone that can do this quite the way you do. And frankly, I'm ready for you to suck it up and do something about it.

You've pushed me before, given me ideas and feedback - criticism and praise...and it's helped me tremendously. In the beginning I was intimidated by how good you are, and I've heard others say that as well, but maybe it's time for the rest of us to start pushing you. There IS a market for what you write and if you’d get off your ass, you’d give Sedaris a run for his money.

Shopgirl said...

Can't agree with OWO more. Your writing has a touch of the older world classics. It would be a pleasure to have one on the shelf, even though I have a kindle.

Moannie said...

I had to come back...your post has been there in the back of my mind all day..then, reading my emails I saw the comment from otherworldyone and I'm cheering yayeee!

I've been saying this since I first laid eyes on your blog..I do know a writer when I see one. Do us all a favour N.and bite the bullet. No one can make ordinary magically into bliss the way you do, seemingly effortlessly. We love Kelly, thanks to you, walk to the station with you and sit at your desk. You read people and have the gift to make us see them too.

At least say that you will give it careful thought.

Actually...string all your posts together and you will have a best seller and I and Saz and at least a thusand of us will be in line.

Jane said...

Feel uncomfortable just reading this.......
I do similar sorts of things for my husband because I love him and I'm sure that's why Kelly does this for you.

I second everything that OWO says.
Count me in to buy your book!

BarkyMag said...

Eeeaagh. I had this done a long time ago and thought I had successfuly blotted it from my memory but your post brought it all back! The fuckers didn't warn me either - just gave me a thing the size of a Kinder egg attached to 6ft of tubing and made me swallow it. And pulling it out... My god, her feet were braced on the floor and she pulled it out, hand over fist, like reeling in a particularly lively fish. So glad you had Kelly there. Some things should not be experienced alone. A well written post but next time, insist on anaesthetic!
PS. I'd buy your book too :)

Mr London Street said...

I've loved all these comments, thanks so much. Do keep them coming if you haven't commented already.

Starlight – Sounds like you have a similar diagnosis to me – my sympathy.

Mrs Jones – Next time I’m just going to lie and tell them I’ll have a total breakdown if they don’t sedate me. Really nice to see you dropping by, I thought you had stopped reading.

Leisa – Why didn’t I know all this before the gastroscopy, eh? I don’t think it’s brave when you don’t think you have a choice.

TalesNTypos – Yes, I think real love has a lot more going for it, warts (or verrucas) and all.

Robbie – If that’s how you felt, I think it worked, so thank you.

Saz – Yes, you’re right. I think the element of mystery, of mystique, goes as a relationship develops. I think – I certainly hope – that what replaces it is better.

deililly – No, maybe not. Maybe it’s only really important to keep your dignity when you lose love, not when you’re in it. Thanks so much for commenting.

Mr London Street said...

MsPearl – No. The camera is the only way. Thanks for the reassurance!

Fi – Lovely to get a comment from you! Yes, it’s more drugs for the rest of my life and apparently if it’s really bad the delights of keyhole surgery. Happy days.

Shruthi – Thank you. I hope it managed to say something (aside from chronicling how those nurses violated me – in fairness, they were lovely).

Lady Jennie – They would never put you under a general for this sort of thing or you wouldn’t swallow.

Helen – The medication makes things more bearable – a life without red wine or chocolate would just be dreadful. But I do miss things like late snacks, or a cup of tea carried through at bedtime. Thanks for your thoughtful comment, it’s reassuring to see other fellow sufferers.

Moannie – You might be right on the verruca front. I do know you’ve reinstated your old blog and are restoring your posts one by one. Will new stuff appear on your second blog? It’s all rather complicated, but what a relief your writing isn’t lost.

Debbie – I would take a smear over a gastroscopy any day.

Minnie said...

Powerful description of a gastroscopy which, in a manner of speaking (;-)!), er, brought it all back ... went through 4 of 'em 6 years ago (unhealed burst ulcer; suspected cancer) & hope never to repeat the experience.
I understand hernia is easily healed, and hope so for your sake.
K's devotion must make all the difference.
Bon courage from France.

Mr London Street said...

OWO – Thank you. I’m glad it worked, and yes, I do take care of her but she doesn’t seem to need as much of it as I do.

On your different note – I don’t have a novel in me, because I don’t have any interest in writing fiction. I remain convinced that interest in writing like mine is very limited. Nobody seems to want non-fiction, either as submissions to publications or as a book. I don’t know how I would go about turning what I have written into something publishable, What I’ve seen – in the blogosphere and on Twitter this year – is that a lot of it is about who you know and connections rather than ability and I’ve found that very demotivating. Maybe I’ll attack this again next year, but I feel flat about it now. I also haven’t found a niche where I think my writing would fit – all the online periodicals I’ve found publish a very different, very American style of writing which I couldn’t and wouldn’t want to write.

Shopgirl – Thank you. That’s really kind of you.

Moannie – I appreciate the pep talk, honestly I do. I’m not sure what I’m meant to be giving careful thought to, though.

Jane – If it ever happens I’ll send you one. That may be the least expensive promise I’ll ever make.

BarkyMag – It’s reassuringto see how many people have been through this apart from me, more reassuring still that nobody has said “man up, it was a breeze”. Thanks too for the feedback on the book. It’s really heartwarming that people believe in my writing. I hope I don’t sound ungrateful just because I sound unconvinced.

Mr London Street said...

Minnie - Thank you. I hope the memories weren't too traumatic, and you're trop gentille, sending such a supportive comment.

Bruce Coltin said...

I left a comment, but I think it might not have gone through, so I'll try again.

Maintaining dignity would have been a high price to pay, if that price had been the poetry that found its way here.

You are such an easy writer, that I sometimes feel clumsy when I see how easily your words and phrases seem to flow.

There was a time when I dismissed your writing as a kind of slick cleverness that never needed to scratch the surface, that was content just to shine and to wow your readers.

But when you do what you have done here...when you reveal all that needs to be revealed, for the sake of truth, you send me away, unable to think of anything else.

No need to return the comment. It all comes out in the conversation.

oldmanlincolnsblog said...

Having had a lung collapse twice, no three times, and continued breathing problems so that I use oxygen, I don't really want my throat or breathing messed with. It is too much of a panic for me. The story was well written though and I enjoyed the way you wrote it.

Mr London Street said...

Bruce - I know you said not to return the comment, but I'm very appreciative of what you said and it seems rude not to respond. Interesting what you say about changing your opinion of the kind of writing I do. I think the writing I do has definitely changed since I started out, but even looking back to last year I can see that I was starting to write the sort of thing I do now. It's an interesting one anyway (well, it is to me, since it's all about me). I suppose ultimately it's for others - like you - to say.

Oldmanlincolnsblog - Oh dear, I'm really sorry to hear that. I hope this one wasn't too uncomfortable for you to read and I'm glad you liked it - really pleased that you dropped by.

Sally-Sal said...

“Is it like having a pet sometimes?”

There’s a terrible pause and I think she’s going to say Yes. She momentarily frowns in concentration, then she smiles, then she comes out with something even worse.

“No. It’s like having a child.”
---

That was one of the best pieces of writing I've ever read.

And I was hoping she'd say that you were like a pet.